July 21

 Brian continues to have issues with his heart rate and blood pressure. Doctors are continuing to work on getting him the best combination of medication for his needs. Brian's bilirubin is at 16.8 today. His doctor expressed concern that he doesn't seem to be showing improvement in his four damaged organs (lungs, heart, kidneys, & liver). Tomorrow evening, we are looking forward to being back in Santa Clara to spend time with him.